Twenty-seven children with achondroplasia — the most common form of dwarfism — came to Ruijin Hospital Hainan for a patient-education day and, in the same visit, their next course of vosoritide, a licensed medicine that targets the underlying cause of the condition rather than only its complications. One family reported that their son had grown 4.4cm in half a year and was doing better overall.
27 位先天性软骨发育不全患儿来到乐城瑞金海南医院参加患教活动,顺便“续药”——他们使用的是特许新药伏索利肽。这种病是最常见的侏儒症类型,而这款药针对的是病因本身,不只是处理并发症。一位家长说,半年时间孩子长高了 4.4 厘米,状态也更好了。
This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。





