Hainan Medical Tour
My submissions我的提交
Free consultation免费咨询
Treatments治疗项目 Patient stories患者故事 Pricing费用 Why Lecheng为什么乐城 Getting here怎么到 FAQ常见问题 About关于 My submissions我的提交
Free consultation免费咨询
27 children with achondroplasia — official photo, Lecheng archive
🇨🇳 China中国 Official story · Nov 2024官方故事 · 2024 年 11 月

Twenty-seven children on the same drug, and 4.4 centimetres in six months27位患儿同步用上“救命药”!乐城瑞金海南医院为这类罕见病患者带来新希望

Patient患者
27 children with achondroplasia27 位先天性软骨发育不全患儿
Condition病种
Achondroplasia先天性软骨发育不全
Treatment治疗
Vosoritide, a licensed new drug at Ruijin Hainan瑞金海南医院使用特许新药伏索利肽
Outcome结果
One boy grew 4.4cm in six months一个男孩半年长高 4.4 厘米

Twenty-seven children with achondroplasia — the most common form of dwarfism — came to Ruijin Hospital Hainan for a patient-education day and, in the same visit, their next course of vosoritide, a licensed medicine that targets the underlying cause of the condition rather than only its complications. One family reported that their son had grown 4.4cm in half a year and was doing better overall.

27 位先天性软骨发育不全患儿来到乐城瑞金海南医院参加患教活动,顺便“续药”——他们使用的是特许新药伏索利肽。这种病是最常见的侏儒症类型,而这款药针对的是病因本身,不只是处理并发症。一位家长说,半年时间孩子长高了 4.4 厘米,状态也更好了。

This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。

Photos from the story故事照片

Ask about a treatment like this咨询类似治疗 Back to all patient stories返回患者故事列表

More patient stories更多患者故事

Want to know what a treatment like this costs — and how long you would stay in Hainan? 想知道类似治疗要多少钱、在海南要待几天?

Send us your medical file and we will come back with a hospital, a doctor and a written cost estimate. Free, and we will say so plainly if Lecheng is not the right place for your case. 把病历发给我们,我们会回复你医院、医生和书面费用预估。免费咨询;如果乐城不适合你的情况,我们会直说。

Free consultation免费咨询

Individual case, not a clinical study and not a promise about your outcome. Treatment decisions belong to you and your doctor. Photos © the Lecheng Administration, used with credit; this page summarises the published facts in our own words — original article. 个案,非临床研究,不构成对你治疗结果的承诺。治疗决定由你和你的医生做出。照片版权归Lecheng Administration所有并已标注来源;本页以我们自己的文字概述已发布的事实——官方原文。