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Mother living with myasthenia gravis — official photo, Lecheng archive
🇨🇳 China中国 Official story · Dec 2024官方故事 · 2024 年 12 月

When breathing and living hit “pause”: restarting life with myasthenia gravis当呼吸和生活被按下“暂停键”,他们如何重启“有力”人生?

Patient患者
Mother living with myasthenia gravis重症肌无力患者、一位母亲
Condition病种
Generalised myasthenia gravis全身型重症肌无力
Treatment治疗
Treatment at Lecheng for a disease diagnosed in 2007在乐城治疗 2007 年确诊的疾病
Outcome结果
Able to smile at her son’s photographs at last终于在儿子的照片里笑出来了

Jiajia was diagnosed with myasthenia gravis in 2007, while still in high school. Drooping arms, weak legs, choking on her own saliva, and a tiredness other people read as laziness became ordinary. By the time her son was 22 months old she had no photograph with him, because she could not smile — the muscles moved without control and a smile came out looking like crying. Generalised MG joined China’s first rare-disease list in 2018; at Lecheng she found treatment that let her begin to take her life back.

佳佳 2007 年还在读高中时确诊重症肌无力。手臂下垂、腿脚无力、咽口水会被呛到,那种无力感常被旁人误解成“懒”。儿子出生 22 个月,她竟没有一张和孩子的合照——因为她笑不出来,一张嘴肌肉就不受控,笑比哭还难看。2018 年全身型重症肌无力被纳入中国首批罕见病目录;在乐城,她找到了让生活重新开始的治疗。

This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。

Photos from the story故事照片

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Send us your medical file and we will come back with a hospital, a doctor and a written cost estimate. Free, and we will say so plainly if Lecheng is not the right place for your case. 把病历发给我们,我们会回复你医院、医生和书面费用预估。免费咨询;如果乐城不适合你的情况,我们会直说。

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Individual case, not a clinical study and not a promise about your outcome. Treatment decisions belong to you and your doctor. Photos © the Lecheng Administration, used with credit; this page summarises the published facts in our own words — original article. 个案,非临床研究,不构成对你治疗结果的承诺。治疗决定由你和你的医生做出。照片版权归Lecheng Administration所有并已标注来源;本页以我们自己的文字概述已发布的事实——官方原文。