Jiajia was diagnosed with myasthenia gravis in 2007, while still in high school. Drooping arms, weak legs, choking on her own saliva, and a tiredness other people read as laziness became ordinary. By the time her son was 22 months old she had no photograph with him, because she could not smile — the muscles moved without control and a smile came out looking like crying. Generalised MG joined China’s first rare-disease list in 2018; at Lecheng she found treatment that let her begin to take her life back.
佳佳 2007 年还在读高中时确诊重症肌无力。手臂下垂、腿脚无力、咽口水会被呛到,那种无力感常被旁人误解成“懒”。儿子出生 22 个月,她竟没有一张和孩子的合照——因为她笑不出来,一张嘴肌肉就不受控,笑比哭还难看。2018 年全身型重症肌无力被纳入中国首批罕见病目录;在乐城,她找到了让生活重新开始的治疗。
This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。



