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Four-year-old with short bowel syndrome — official photo, Lecheng archive
🇨🇳 China中国 Official story · Nov 2023官方故事 · 2023 年 11 月

Six months from expo stand to patient: how an orphan drug reached a four-year-old乐城借助进博会平台加速推动政策红利释放:从首展到落地仅6个月,患儿用上“孤儿药”!

Patient患者
Four-year-old with short bowel syndrome4 岁短肠综合征患儿
Condition病种
Short bowel syndrome短肠综合征
Treatment治疗
Orphan drug via Lecheng, six months after its first CIIE exhibit孤儿药经乐城落地,距进博首展仅 6 个月
Outcome结果
From “seen at the expo” to “used by a patient” in half a year从“展会上看得见”到“患者用得上”,只用了半年

A four-year-old boy from Lanzhou was born with short bowel syndrome: after major resection his intestine can no longer absorb enough to sustain growth, and at home the only option was lifelong intravenous nutrition. China had no approved drug. The product was shown at the China International Import Expo, and six months later — through Lecheng’s pilot channel — he became one of the patients using it. The article traces how the expo, the zone and the hospitals shortened that distance.

家住兰州的果果出生不久就患上短肠综合征:小肠被大量切除后,肠道吸收面积不足,无法维持营养和生长,只能长期依赖肠外营养和静脉输注。国内长期处于“国际有药、国内无药”的困境。这款孤儿药在进博会上首次展出,6 个月后经乐城先行通道落地,果果用上了它。文章讲的就是这条从展台到病床的路是怎么被缩短的。

This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。

Photos from the story故事照片

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Individual case, not a clinical study and not a promise about your outcome. Treatment decisions belong to you and your doctor. Photos © the Lecheng Administration, used with credit; this page summarises the published facts in our own words — original article. 个案,非临床研究,不构成对你治疗结果的承诺。治疗决定由你和你的医生做出。照片版权归Lecheng Administration所有并已标注来源;本页以我们自己的文字概述已发布的事实——官方原文。