Two fathers — one from Guangdong, one from Henan — arrived at Zhongshan Ophthalmic Center Hainan in Lecheng within a week of each other. Their sons share the same rare disease, LHON, which can strip a young person's vision in weeks. Both boys were treated with Raxone (idebenone 150mg), the world's first approved drug for LHON vision loss, which Lecheng's pilot policy brought to Chinese patients; 100+ patients have benefited so far.
两位父亲——一位来自广东、一位来自河南——前后脚走进乐城的中山大学中山眼科中心海南国际眼科医院。他们的孩子患同一种罕见病 LHON,视力可能在几周内被夺走。两个孩子都用上了 Raxone(艾地苯醌150mg)——全球首个获批用于 LHON 视觉损害的药物,依托乐城先行政策,已惠及百余位患者。
This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。





