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Two patients whose sight vanished suddenly — official photo, Lecheng archive
🇨🇳 China中国 Official story · Sep 2026官方故事 · 2026 年 9 月

Vision suddenly “stolen” by disease: new hope at Boao Lecheng被疾病突然“偷走”视力,他们在博鳌乐城迎来新希望

Patient患者
Two patients whose sight vanished suddenly两位被疾病突然夺走视力的患者
Condition病种
Sudden vision loss突发性视力丧失
Treatment治疗
Special-access therapy特许药械治疗
Outcome结果
New hope — the archive's phrasing, not a claim of cure迎来新希望——这是原文措辞,并非治愈承诺

Two fathers — one from Guangdong, one from Henan — arrived at Zhongshan Ophthalmic Center Hainan in Lecheng within a week of each other. Their sons share the same rare disease, LHON, which can strip a young person's vision in weeks. Both boys were treated with Raxone (idebenone 150mg), the world's first approved drug for LHON vision loss, which Lecheng's pilot policy brought to Chinese patients; 100+ patients have benefited so far.

两位父亲——一位来自广东、一位来自河南——前后脚走进乐城的中山大学中山眼科中心海南国际眼科医院。他们的孩子患同一种罕见病 LHON,视力可能在几周内被夺走。两个孩子都用上了 Raxone(艾地苯醌150mg)——全球首个获批用于 LHON 视觉损害的药物,依托乐城先行政策,已惠及百余位患者。

This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。

Photos from the story故事照片

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Want to know what a treatment like this costs — and how long you would stay in Hainan? 想知道类似治疗要多少钱、在海南要待几天?

Send us your medical file and we will come back with a hospital, a doctor and a written cost estimate. Free, and we will say so plainly if Lecheng is not the right place for your case. 把病历发给我们,我们会回复你医院、医生和书面费用预估。免费咨询;如果乐城不适合你的情况,我们会直说。

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Individual case, not a clinical study and not a promise about your outcome. Treatment decisions belong to you and your doctor. Photos © the Lecheng Administration, used with credit; this page summarises the published facts in our own words — original article. 个案,非临床研究,不构成对你治疗结果的承诺。治疗决定由你和你的医生做出。照片版权归Lecheng Administration所有并已标注来源;本页以我们自己的文字概述已发布的事实——官方原文。