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Patients with an inherited eye disease — official photo, Lecheng archive
🇨🇳 China中国 Official story · Jan 2026官方故事 · 2026 年 1 月

Six Chinese firsts in one day: LHON patients receive a global innovative drug at Ruijin Hainan1天6个中国首例!眼科罕见病LHON患者在乐城瑞金海南医院用上全球创新药

Patient患者
Patients with an inherited eye disease遗传性眼病患者
Condition病种
LHON — Leber hereditary optic neuropathyLHON——莱伯遗传性视神经病变
Treatment治疗
A globally new drug at Ruijin Hainan Hospital在瑞金海南医院用上全球创新药
Outcome结果
Six China-first treatments in a single day一天之内完成 6 个中国首例用药

On 17 January 2026, six patients with Leber hereditary optic neuropathy (LHON) — teenagers, young graduates, family breadwinners — received idebenone (150mg) on the same day at Ruijin Hospital Hainan in Lecheng, becoming China's first patients treated with the drug. It had been approved for the Lecheng pilot zone less than a month earlier.

2026年1月17日,六位莱伯遗传性视神经病变(LHON)患者——有十几岁的少年、刚毕业的年轻人、上有老下有小的中年人——同一天在乐城瑞金海南医院完成艾地苯醌(150mg)治疗,成为中国首批用上该创新药的患者。此时距该药在乐城获批还不到一个月。

This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。

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Want to know what a treatment like this costs — and how long you would stay in Hainan? 想知道类似治疗要多少钱、在海南要待几天?

Send us your medical file and we will come back with a hospital, a doctor and a written cost estimate. Free, and we will say so plainly if Lecheng is not the right place for your case. 把病历发给我们,我们会回复你医院、医生和书面费用预估。免费咨询;如果乐城不适合你的情况,我们会直说。

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Individual case, not a clinical study and not a promise about your outcome. Treatment decisions belong to you and your doctor. Photos © the Lecheng Administration, used with credit; this page summarises the published facts in our own words — original article. 个案,非临床研究,不构成对你治疗结果的承诺。治疗决定由你和你的医生做出。照片版权归Lecheng Administration所有并已标注来源;本页以我们自己的文字概述已发布的事实——官方原文。