On 17 January 2026, six patients with Leber hereditary optic neuropathy (LHON) — teenagers, young graduates, family breadwinners — received idebenone (150mg) on the same day at Ruijin Hospital Hainan in Lecheng, becoming China's first patients treated with the drug. It had been approved for the Lecheng pilot zone less than a month earlier.
2026年1月17日,六位莱伯遗传性视神经病变(LHON)患者——有十几岁的少年、刚毕业的年轻人、上有老下有小的中年人——同一天在乐城瑞金海南医院完成艾地苯醌(150mg)治疗,成为中国首批用上该创新药的患者。此时距该药在乐城获批还不到一个月。
This page is a short English/Chinese summary of the facts in a patient story published by the Lecheng Administration. Photos are from that publication, credited; a link to the original Chinese article sits at the foot of this page. 本页是对Lecheng Administration发布的一篇患者故事中事实的简短中英摘要。照片取自该发布并标注来源;官方中文原文链接见本页页脚。




